Pippa Rea

Pippa's Journey with a Brain Tumour

The Strongest, Kindest, Most Beautiful Woman I Know

My name is Libby.  I am Virginia’s cousin and darling Pippa’s Godmother.
  Over the years Gin and I have shared many wonderful times and helped each other through some difficult situations. She is like a sister to me and Pippa; another daughter.  
I have William and Claudia, who adore their ‘cousins’ – the lovely James, Patrick and Pippa.

I have the complete and utter privilege to be part of the journey that this beautiful family have embarked upon.  
I have been in family meetings, Dr’s appointments, social worker appointments, Ronald McDonald House, MRI machines, at Peter Mac, in hospital rooms, cafeterias, and the list goes on…

In the midst of all of the chaos, quiet, sadness, laughter, confusion and love is the most incredible person I know.
  Virginia Rea.
  She has taken on the most difficult task any mother has had to face with grace and beauty.  
Her children come first and foremost. Her explanations are delivered with patience and kindness. Pippa is handled with love, care and most importantly, respect.

All of Virginia’s decisions are made with attention to detail, thought and consideration for others.  
Her openness and generosity of spirit and genuine care of other people is extraordinary.
  She has fought many battles on her own and won; the biggest to date being the wonderful parent she is.

I ask all of her friends, her family and anyone reading this to please take some time out of your day to raise a glass to this amazing, resilient, beautiful woman.
 She will fight this battle along side of Pippa, with strength, dignity, wisdom and love and she won’t stop until she gets the result she wants.

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Lygon St

A good part of today day was spent at Peter Mac being measured, assessed, scanned, informed and questioned in preparation for radiation.  It feels like this can’t be happening; that this is not actually me.  Unfortunately, I know that it is true simply because I’ve never spent this much time with this many medial people in my whole life.  There’s certainly no way I can be dreaming up or imagining the sort of stuff they talk to me about.  Quite often I find myself saying, “Sorry can you repeat that, I didn’t hear it?”

The complicated formulas that need to be worked out for Pipps’s treatment can’t be rushed, nor too can the healing of her surgical scar.  Thus, tomorrow we return to a normal life – home, school and sport (along with the odd sibling tiff!).

Tonight was spent enjoying a fun family dinner in Lygon St – Pizza, pasta and Ice Cream!!!!

Pippa is pleased to be heading home to her own bed, I am exhausted.

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The Worst 24 Hours of My Life

I honestly thought I had already well and truly had more than my fair share of “bad stuff” (I’ll refrain from using expletives) in my life.  Clearly everything that has happened to me over the past years has been to prepare me for what now lies ahead.  I have fought hard and strong before for the wellbeing of myself and my children and I will do it harder and stronger again.

Pippa has been diagnosed with an aggressive form of brain cancer within her brainstem.  Her treatment will soon start and will involve 6 weeks of daily radiation at Peter MaCallum Cancer Centre combined with oral doses of chemotherapy.

I believe in her and I believe in the team of Doctors (in particular, her oncologist) that are going to be walking this path with Pippa, James, Patrick and myself.

At the moment we need to find self contained accommodation for Pippa and myself in close to Peter Mac for 6 weeks with the hope that she and I will return to our boys each weekend to hang out and watch footy.

I need the continued positive support and energy drawn from all our family and friends.  Sometimes, I might need our little bit of space also.

Here begins our journey and I hope with all my heart and soul that this day will remain for ever the worst day I will ever have to endure.

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A Busy Day @ RCH

Pippa was eagerly awaiting the arrival of Armelle this morning to go and see the meerkats.  Scurrying around the enclosure with the “Sentry” watching over they are always entertaining. As too is the amazing circular aquarium that stretches between two floors – there always seems to be a new fish we haven’t seen before appear from the coral.

The surprise of the morning though was a performance in the foyer of the hospital by the Harvard Crocodillos;  a real life Pitch Perfect Style all male “A cappella” group!!!  Yes, they really do exist and we all thought it was just a movie.  Only in America!

We had more visitors in the afternoon – Gordon and Russell delivering a huge supply of  Ferrero Rocher.  Then Brydie, Virginia, Emily and Olivia arrived at the perfect time to help us move rooms – just down the corridor and around the corner to let another post surgery patient have our room. I have no idea how two people can accumulate so much “stuff” in a hospital room in just 4 days!

Emily and Olivia brought in the most beautifully made posters with more lovely stories about Pippa to help brighten up her room.

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Pride and Tears

I may or may not blog anything for a few days as nothing much will change.  Pippa is a star patient!  I was told she would possibly vomit for up to 2 days post surgery – she didn’t.  I was told Saturday would possibly be a pretty painful and awful day for her – it wasn’t.  For now we are  just waiting for results of tests.

However, I wanted to blog a story from a very thoughtful card we received – I was filled with tears and pride at the same time for my beautiful daughter……….

Dear Virginia, Pippa, James & Patrick,

We are thinking of you.  We have fond memories of meeting you all at Port Fairy.

Virginia, your words about Pippa ring so true…….”a caring and thoughtful friend to everyone she meets.”

The first time we turned up at Nippers Pippa extended her hand to Edward, although she was holding her other friend’s hand, and gracefully ran with both of them on either side of her into the waves.  That spontaneous friendliness was such a mark of character.  She didn’t need to be told at the time that Nippers’ culture was quite foreign to Edward – the vast beach, the awesome waves, the strong wind and the sea of unknown kids in wetsuits and skull caps.  

Pippa, your gesture of friendship, which was so spontaneous, put Edward at ease and from that moment he felt part of  Nippers and considered you his friend.  He looks forward to seeing you again this summer.  You are a truly beautiful friend through and through.

Thank you to everyone for so many beautiful messages like this one xx

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Footy and Rock Climbing……..

……Not Pippa!

Patrick went to watch his beloved bombers win and James went indoor rock climbing with friends

Pippa went for a huge walk in preparation for taking Armelle to visit the meekats when she visits tomorrow.

Currently we are “chillaxin” watching Pitch Perfect 🙂

 

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