Pippa Rea

Pippa's Journey with a Brain Tumour

Pippa, you’re an amazing girl no matter what……

When I see your face
There’s not a thing that I would change
‘Cause you’re amazing
Just the way you are

And when you smile
The whole world stops and stares for awhile
‘Cause girl, you’re amazing
Just the way you are

“Bruno Mars”

 

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Gorgeous Pippa

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In a Nutshell

In a nutshell nothing has actually really changed since last Wednesday.  Pippa still has a lump on her brain stem (actually it is inside her brain stem) and we don’t know what it is.  She was immediately put on steroids that reduce any swelling and stabalise the lump.  Clearly they are doing their job because as my mother commented, she has lot her appetite and gained a horse’s appetite!

Because of the position of the “lump” surgery to remove it is not an option.  However, after more MRI tests at the RCH did not result in an answer as to what type of “lump” this is, brain surgery to perform a biopsy is now necessary.  That is scheduled for Thursday 11th July.  It will be a very hard day and the 6 day recovery will be equally hard for  Pippa, but also for the rest of us to know that the surgery has been successful in gaining tissue to sample and test, that there will be no complications and there will be no post surgery side affects.

We have had amazing support from so many people.  She has had her aunty (Eleanor) and cousins (Chloe & Mel) fly in from WA, and Libby & Claudia have been extra special people looking after us and being the special friends and cousins that they are. It is completely overwhelming and I thank each and every person, near and far, for all their wishes, generosity and kindness.

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Friends

Pippa has been allowed to return home a couple of times in the past week (a week that actually feels like an eternity) while we wait for steroids to do their work and the wonderful doctors at RCH to determine the best actions to take.

This has been a great opportunity for her to catch up with her many friends – everything happened so quickly she literally disappeared over night!

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Cupcakes!

Cupcakes!

What a lucky girl to have so many people caring about her
Here are cupcakes that were made for Pippa by a “friend of a friend”

Such an amazing thought – thank you Yummo!!! 🙂

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A Day of Brain Surgery

Darling, Gorgeous Pippa went bravely into brain surgery with her big blue eyes sparkling and a smile on her face right until she fell asleep. (After a rather sleepless night I’m actually a bit jealous that she’s going to catch up on about 6 hours!)

My hopes are that the doctors are successful in gaining tissue to test so we know what this lump is and how it can be treated – and that they can do it without any complications for our little princess.

The last things she wanted to know was how long until she could eat some food and how long before she could run around and play sport after her operation!   She wanted to me to wear my peach earrings she had bought me as a present.

We did maths sums as she went off to sleep and we both agreed that she was faster than the theatre staff and that she has a super duper brain!

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