Pippa Rea

Pippa's Journey with a Brain Tumour

Brain Therapies

During radio therapy at Peter Mac Pippa’s oncologist and nurses strongly advised me that for at least the next two years I should support Pippa in undertaking and pursuing a range of therapies to assist her brain in its development and to minimise the side affects of the radiation.  This was reinforced and supported by her music therapist at Peter mac and by RCDFund and their music and yoga therapists who were also with Pippa  throughout radiation.

Thus, I have committed to an ongoing routine that so far incorporates drumming, yoga and dancing in addition to her sport (currently tennis and basketball).  On top of school she also does online brain training activities and games.   These therapies provide Pippa’s brain with stimulation in rhythm, memory, coordination, meditation, concentration, flexibility, balance  and left/right brain function.

Just as important though, each therapy is so much fun and she loves learning   them.  We are privileged that her “therapists” (teachers) are all special people in her life, bringing with them an abundance of positive energy and enthusiasm for what they love and in turn, sharing that with Pippa.

Drumming, yoga and dancing.  How lucky Pippa is to be able to have so much fun doing therapy!

In the words of her drumming teacher, “Yeah,……Good Work!”    Drumming Lesson

 

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Much Needed Research

Today has been a cancer research themed day.

On Australia Day Pippa was the VIP guest at a fundraising event in Warrnambool.

This understated  little event called Kick-It Down Under was held in aid of the Royal Children’s Hospital Cancer Research.   The second time it has been held in Warrnambool (the only times outside the USA), it is part of the Jeff Gordon Children’s Foundation raising much needed research money across the United States for Paediatric Cancer.  The game (Kick Ball) is similar to baseball but with a large rubber ball that is kicked.  I had to do a bit of googling to work it out but my children tell me in Australia they call it “Boot Ball” and play it at school and with friends in the street.

The participants of the game were the Australian and USA Sprint Car drivers who were in Warrnambool for the Australia Day Long weekend Classic.  This is about where my knowledge of all things sprint cars starts and ends, but I think that this particular meet may be the biggest (should I say in the world? I don’t know, the Southern Hemisphere perhaps sounds pretty safe).  Pippa started the game off with a “pitch” and then also kicked and ran for both teams.  A fun experience!  Today was the cheque presentation to the hospital.

Later this afternoon we also went to meet the family who have started Robert Connor Dawes Fund.   In memory of their son,  brother and friend, this group are campaigning for more brain cancer research.  They are also the inspiration, motivation and support behind Pippa’s yoga and music therapy through her radiation and now her continued yoga therapy in Melbourne.  It was a little bit confronting for me and I was quite apprehensive.  Liz has been on the other end of a text message for me and I felt I wanted to meet her.  I’m glad I did but I am particularly glad that they were abe to meet Pippa.  I applaud them for all they are doing and for speaking up  loud for brain cancer research and hope that by meeting Pippa their fight will be inspired further.

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The Worst 24 Hours of My Life

I honestly thought I had already well and truly had more than my fair share of “bad stuff” (I’ll refrain from using expletives) in my life.  Clearly everything that has happened to me over the past years has been to prepare me for what now lies ahead.  I have fought hard and strong before for the wellbeing of myself and my children and I will do it harder and stronger again.

Pippa has been diagnosed with an aggressive form of brain cancer within her brainstem.  Her treatment will soon start and will involve 6 weeks of daily radiation at Peter MaCallum Cancer Centre combined with oral doses of chemotherapy.

I believe in her and I believe in the team of Doctors (in particular, her oncologist) that are going to be walking this path with Pippa, James, Patrick and myself.

At the moment we need to find self contained accommodation for Pippa and myself in close to Peter Mac for 6 weeks with the hope that she and I will return to our boys each weekend to hang out and watch footy.

I need the continued positive support and energy drawn from all our family and friends.  Sometimes, I might need our little bit of space also.

Here begins our journey and I hope with all my heart and soul that this day will remain for ever the worst day I will ever have to endure.

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