Pippa Rea

Pippa's Journey with a Brain Tumour

Innocently Beautifully Sad

It’s now been more than five months since we lost our beautiful Pippa.

As the day approached (the 28th of every month seems to loom as a dark shadow slowly creeping up to engulf me) I thought I was prepared and in control, expecting how my feelings would unfold and what events would mark the day. I was wrong.

I thought that the “five months since losing Pippa” was going to be marked by the beautiful, selfless and humbling gesture shown by Hayley. It wasn’t.

On the morning of Friday 28th August (5 months) I could not ignore the fact that it was “book week” and everywhere I looked were primary aged students (Pippa’s school friends) dressed up as characters from books. I found myself wondering what Pippa would have gone dressed up as?  I have photos of her dressed up as Miss Marple from Agatha Christie, Gabriella from High School Musical (yes, I had made her produce a book!) and my favourite, up a tree as Koala Lou.

Would Pippa have gone as a character from the Faraway Tree?  No, because if she weren’t dying she wouldn’t have been searching for comfort and solace in the magical stories of the Faraway Tree and its warming characters with its mystical lands listening to chapter after chapter every night for the last four months of her life. Would she have gone dressed up as Ruby Red Shoes visiting Paris? No, because she probably wouldn’t have received the book as a gift on her 11th birthday as we wouldn’t have taken a trip to Paris if she weren’t dying.   What character would Pippa have dressed up as for book week in grade 5?  I don’t know.  One of many “I don’t knows” I’m going to face as I gingerly bypass small and not so small milestones after losing a daughter at the precious age of 11 years to an incurable brainstem tumour.

I thought that the “five months since losing Pippa” was going to be marked by costumes and smiling happy faces of other children dressed up for book week. It wasn’t.

Instead, Pippa’s four-year-old friend, Amyius, innocently marked the “five months since losing Pippa”.

I had bumped into Amyuis in one of Pippa’s favourite shops only the Friday before.  Pippa had bought me many little gifts from this homewares’ shop and had decided it, along with her favourite clothing shop, would be good places for her to have her first part time jobs when she turned 14 years and 9 months old (to be precise).

It had been a while since I had seen Amyius and he had not been to our house since Pippa was lying in her bed the days after she passed.  When he came then he was quiet, tip-toeing around careful not to wake her.  Amyius looked at me that day in the shop with a sad little face and told me he always asks his mum, “When is Pippa going to come home so she can eat chips and play trains with me?”   He told me his mum says she’s not coming home.  It was almost like he was hoping that I would prove his mum wrong and correct the answer he had been given.  He gave me a cuddle and let me carry him and his sad little face to the car.

(Pippa took great joy in showing anyone this “isn’t he just so cute?” video of Amyius sending Pippa a message very early on in her diagnosis hoping she gets better soon so she can eat chips and play trains with him again.)

Coinidently, last Friday night (five months) Amyius came around to our house.  This tiny little boy who I have only ever seen cuddle his family and Pippa, gave me another cuddle, pointed to a photo of Pippa and said, “I miss her”.

Later, as football was being watched and chatter was around the table and in the lounge room Amyius and I went quietly to look at all the photos of Pippa.  We ended up in Pippa’s bedroom. Every night I draw the curtains and turn a lamp on.  There’s a few different lamps in Pippa’s room and I turn on whichever of them I feel like at the time.  This night though, for some reason, I had taken a lamp down from on her bookcase, placed it beside her bed and turned that one on.  I had not done this before.  It was a light a friend from school had given Pippa in probably only her last weeks. It has stars of blue and red that glow on the walls and the roof.  Pippa couldn’t use it to go to sleep with as her friend had wanted her to because her eyes didn’t close properly and therefore the projecting lights were too bright.  We did, however, often to turn it on and look at all the beautiful stars it would make around the room. She liked getting me to move it to different positions and heights as each change would alter the “constellation”.

Amyius walked into Pippa’s room and was immediately captivated by the stars.  He was dazzled! He marvelled at the stars, how they changed and at how much he loved Pippa and her room.  He wandered around asking me questions, looking under her bed, touching things and always coming back to the beautiful stars.  He found some jewel stickers that had fallen under her day bed (covered in teddies) and asked if he could stick the love heart ones on Pippa’s bed for her?  He did.  He picked up her little cow pillow pet that sits on her bed beside her pillow.  He cuddled it.  It smells just like Pippa.   When he realised this he went along every other teddy that sits against her pillow on her bed.  He picked them all up, cuddled them and smelt them.  Each of them smelt like Pippa – Sprinkles, Geoffrey, Henry, Monty and Nibbles Puppet.

Pippa's teddies on her bed

He hopped over to the other side of the bed and using Nibbles Puppet ducked down and performed a puppet show for me in which he was Nibbles, Pippa and Amyius.  He told me that the stars were his and Pippa’s stars – hers were the red ones and his were the blue ones.  They were together in the stars.  He said, “When I go home and go to bed and pray to Pippa tonight I will tell her how beautiful the stars in her room are and how they are sparkling for me and her”.  I told him she could see him in her room and she already knew he liked them.

Eventually Amyius asked me if Pippa was ever going to come back to her room and her bed. With my eyes filled with tears, grateful for a dark room and stars sparkling on the walls I told him, “No, our darling Pippa wasn’t going to come back.”  He knelt down beside her bed and lay his head on her doona.  “Well then,” he said, “maybe I could come and have a sleepover in Pippa’s bed so I can smell her teddies.”

He cuddled me again and then we had to go and get his mum to show her Pippa’s room and have her smell Pippa’s teddies.

 

That’s how five months after losing Pippa was marked………eloquently and innocently and oh so sadly beautiful by little her four-year-old friend.

 

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Artistic Inspiration

Recently  I met Pippa’s class at the art gallery.  Pippa’s portrait is on display in a local competition.  It has been entered by her Teacher Aide who spent a lot of time with Pippa both in the classroom this year and at our home.  They would laugh, play games, find cool music apps, draw, paint, do assignments and of course her favourite school work – maths.  Pippa was very chuffed that she was capable of doing maths equations far beyond her years and Jeff always left our home with sheets full of math problems and numbers depicting the latest numeric patterns they were working on.  She even did this on her very last day.

Needless to say, Jeff, like everyone has been deeply affected by the loss of Pippa.  Jeff stays in touch which is lovely and along with registering her star on our behalf, he has put his feelings into two magnificent pieces of artwork.

We went along to admire his talent and the class of E1 then had some quiet time drawing or writing what they felt on paper. There were some attempts at replicating Jeff’s portrait, but there were also a lot of beautiful frangipanis drawn – art again inspired by Pippa!

Both of Jeff’s pieces are done with fine pencil and the detail is incredible.  This portrait is currently hanging in the Warrnambool Art Gallery until 16 August

Pippa Rea, Legs Eleven

 

I’m almost certain Jeff’s portrait received quite a few “people’s choice” votes that day!

Jeff is still entering the following drawing in art competitions around the country.  Every time I see it it takes my breath away – as someone said to me, they have never seen someone so recognisable from behind!  Good luck to Jeff on getting this piece of art displayed somewhere as well.

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Jeff has written very moving and just as touching words that accompany these pieces:

Pippa Rea (Legs Eleven)

I’ve always thought that people come into your life for a reason. They come into your life and make an impact either large or small. You may notice, you may not. I am a teacher aide at a primary school, and this picture is about a special little girl who I supported at that school. She was a very active, friendly, intelligent and an inspiring girl who liked to dream big.

When I first met her I knew she was special. I knew she was in my life for a reason. This special little girl was fighting a big battle with terminal cancer. Everybody thought that she didn’t have long to live, but I was determined and motivated to help her fight it and become better again. As the weeks went by her illness expanded, leaving her unable to walk, talk and hear very clearly. This didn’t stop her though, she was still eager to go to school and hang out with her friends and do school work. On her days when she was unable to make it to school, I was assigned to teach her at her home. It was a very challenging and different experience for me, however, I enjoyed every moment of it. This experience helped me grow as a person by giving me courage and inspiration to live life to the fullest.

Away from school, she liked to play music, especially drums. Unfortunately, with her illness and lack of movement, she wasn’t able to play anymore. However, she could still use her right hand, so I downloaded some drum apps on her iPad so she could still play. She also liked to paint and draw, which was great because it was something I liked to do and that we could do together.

Early this year, she passed away peacefully in her sleep. I was beyond devastated. When I received the msg on my phone, I was right in the middle of the city (Melbourne Central). Surrounded by busy city life, the whole world seemed like it had stopped.

This picture is explaining about this special little girl and her next journey. The ripples in the water are representing multi-universes and different dimensions. She is walking through these dimensions trying to find her own special place. The picture fades out into the distance and is representing the unknown, and that is where her next journey begins.

This special little girl has put a mark on my life forever, and has inspired me to do bigger and greater things. I will always remember her courage and strength, wherever I go and whatever I do. Every time I do a drawing, go for a surf, play music and even going on adventures. She will always be there in my mind and I know she is out there watching over me and everyone else.

Jeff is also the owner of the grey haired, blue eyed husky – precisely what Pippa has always wanted for her 16th birthday!  Exactly the gift I as mother of a long legged, beautiful individual was going to be very happy to give her!!

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I am proud to be Pippa’s mum and proud of the inspiration she has unknowingly bestowed upon others.

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Starry Starry Night

On these clear winter nights we have come accustomed to wandering out into the chilly air and star gazing. Particularly in the direction of the Southern Cross and a little star sitting alongside its base that is now and forever known as “Pippa Rea (Legs Eleven)”.  The purchase of a telescope is in order I believe.  

   
 

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Forgive Me If….

Three months after Pippa has passed and I am still numb.  Please forgive me if I:

don’t speak

don’t get out of the car to watch the footy

don’t sympathise if your child has a cold or a cough over winter

don’t look like I’m following the conversation (I’m not)

don’t socialise

don’t look you in the eye

don’t say I’m sorry that your mother, father, grandparent, uncle, aunt, friend…has passed away at the age of 50, 60,70, 80, 90…  I’m sorry for you but I simply cannot say the words because I am just so raw for Pippa, James, Patrick and myself.  She was only eleven years old!  It’s so unfair!

I still go to tell Pippa things.  I still go to show her a funny photo or a photo of a baby.  I still want to tell her something I have seen or heard or done.  I can’t though and I never remember that; I always have to remind myself that I just can’t anymore.  My little shadow is no longer there.  I go into Pippa’s room every night and every morning opening and closing the blinds and turning lamps on and off.  She would like that I am doing that.

A friend has given me two quotes recently.  They very aptly put into words these past three months:

She’s in the sun, the wind, the rain,

she’s in the air you breathe with every breath you take.

she sings a song of hope and cheer, there’s no more pain, no more fear.

You’ll see her in the clouds above, hear her whisper words of love,

you’ll be together before too long, until then listen for her song.

Pippa’s songs are everywhere.  I especially love it when people tell me about moments when songs that they hear remind them of Pippa.

In her own words it is seconds, minutes, hours, days, weeks, months…

Pippa, there is not a month, week, day, hour, minute or second that I don’t think of you.

Sometimes it’s okay if the only thing you did today was breathe.

I am managing to breathe, but most days at some point I have to manage my breathing.  

Forgive me, but it is so heartbreakingly unfair and I am so terribly heartbroken.

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Farewell to our Beautiful Pippa

Pippa's Sunset

I knew exactly how I wanted to farewell Pippa……something perfectly Pippa and very much reflecting life.

We started in Warrnambool’s tranquil botanical gardens in the afternoon sunshine surrounded by birds, flowers, trees and ducks.  We walked across the little stone bridge that Pippa had run over, fed ducks from and poked her head through many times.  A huge crowd graced the sloping grassy hill.  There were so many people, yet by the many messages I had received, I also knew there were so many who were unable to attend.

Children collected a bookmark as a keepsake to remember Pippa by.

Pippa herself was brought to life on the large screen in videos and photos – singing, dancing, drumming, running, cartwheeling, smiling………..always smiling.

I wanted people, particularly children,  to be able to look at Pippa’s casket and rather than thinking about what was on the inside, wonder at what was on the outside……

a collection of her drawings…….

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Once again, my boys took my breath away and I had to draw on all my strength not to cry as they each stood at the microphone to read the Eulogies they had written for Pippa:

James’ Eulogy……….

Pippa is my best friend.

There are many things I love doing with Pippa.  Things like piggy backs, plenty of adventures and very recently, swimming in the pool and walking to and from school in the chair with Pippa.  Pippa has given all of us lots of wisdom and advice.  As a family we have done so much.  There are thousands of things to say about Pippa.

I would really like to thank all of the people and friends. that supported me and my family.  There are just too many people to mention but I would particularly like to say thanks to Darcy, Harvey, Ryan, Jack, Harry and Lucas for always being there to support me.

Even though Pippa is not here anymore, she will always be with us.

Patrick’s Eulogy……..

I’ll never forget how much Pippa has helped me throughout my life.  She is the most kind, helpful, caring, and generous person I’ll ever meet.  We shared so many great memories together from going to Paris to snorkelling in the Great Barrier Reef.  I would also like to thank all of my family and friends for their support and help throughout this journey.  

I’ll miss you Pippa.

Pippa’s Heaven…….(my Eulogy)

Pippas Heaven

One day Pippa had the opportunity to draw her picture of heaven and then when she was finished she wanted to explain it to me………

Pippa’s heaven is beautiful. It is full of life. It has stars, music, birds, flowers, water, puppy dogs and bunny rabbits. It has a big yellow castle where she will live. It sits on top of the clouds.I asked Pippa if that was the staircase to heaven. She said, “no mummy, that is a ladder so you can climb up and visit me.”  She wrote a list of other names who could also climb the ladder to visit her but she ran out of room on the piece of paper so she wrote……and lots more people.

 I asked Pippa about the rain.

“It’s not rain mummy, it’s drops of water.”

“When you feel drops of water on your face you will know I want you to come and visit me for a while.”

In these last few months Pippa has asked me to read her the Enchanted Wood and the Far Away Tree.

It has helped calm her and has resonated and extended these thoughts of Heaven.

To her, heaven is like the Far Away Tree.

Full of magic and wonder……

 

We have been lucky to have the time we did to share so many special memories with Pippa before saying goodbye……..

Time when she was perfectly well and able to enjoy everything……

Holidays, dreams, friends, family..…… Memories……

Over the years we have marveled at her skills in sport,

and now more recently, her maths and games of both strategy and luck.

Her mind, memory and cheeky spirit remained with her until the very end.

 

Pippa’s determination and “can do attitude” never faulted. On Sunday she typed on her ipad……….

“Remember what we said last time? When we go to the beach again we could try a nippers board. Well, today I am feeling good.”

 We went to the beach to use the beach wheel chair.  I knew a nippers board wouldn’t be possible.

I told her, “Pippa darling, Marli, Rebel, Mark and Jason are all not at the Surf Club today so really I can’t think of anyone else to help you try a nippers board.”

 We got to the beach and John Cook came up to us.  I said, “Pippa, this is John. I know John. We can trust him to lift you safely into the beach chair.”

 Pippa’s eyes lit up and she said, “Great! He can help me on the nippers board too!”

Boy she was tough! 

We suggested she see how the water feels – maybe it might be too cold on her tummy.

John pushed her into the water so her toes could get wet……..

Like that was going to cut it!

 She signaled to go out further and further……..staying in and waiting to get used to the freezing water.  Covered in goose bumps we got dumped by a wave and eventually went back in. It was a bit too cold to try a nippers board.

 But it wasn’t too cold for ice cream.  We went to the kiosk and with that same determination Pippa insisted the wheel chair be removed and she not only stood, but walked along the freezer to choose an ice cream…….by herself.

 

Pippa was very frank and always said exactly what she thought but with just the right amount of sweetness and a special touch of spark ……..

 One day a year or so ago we were sitting in my Auntie’s kitchen. Pippa looked at Camille and said,

“You’re pretty old.  How old are you?”

Camille laughed and replied, 83

Pippa said, “Yes, I thought so.  You must be just about ready to die!  I know that because most people die in their 80s so you’ll probably die soon.”

Pippa was always helping others or making them feel better about themselves………

Whether it was sorting out disagreements in the playground at school, helping shy children settle into school, encouraging someone to try something new and not be frightened, or helping out a stranger……She always had an understanding of what others needed and how they were feeling.

 Pippa looked after her friends. If you were ever invited over for cooking it was probably because she thought you needed a little extra love.  On Tuesday she told me she wasn’t feeling well enough to go and watch Patrick running in the district athletics. Instead she cooked cupcakes and arranged them beautifully on her cup cake stand for him so he knew she had been thinking of him.

I want to share a card that I received this week. When I opened it I jumped for joy and immediately thought how much Pippa would love to know that Sara her old neighbour was thinking of her………….

Dear Virginia, James & Patrick………

Sincere condolences over the loss of Pippa who was such a bright spark.

She filled so many people with such joy, and I feel lucky to have shared a little piece of her life. I will always remember her happiness, sense of adventure and, mostly, her frank and unreserved honesty.  She shared many pearlers that left me in stitches, but I think my favourite was when she said to me,  “Sometimes my mum sends me over to ask for parsley or tomatoes from your garden. But your aren’t here very much, so I just take them anyway”  Remembering that still makes me laugh!

I will miss my little garden helper, and the ladder her brothers lovingly made for her to visit her neighbours.

Thinking of you all at this time,

Sara, Amy and Hayley, your former neighbours from over the fence.

 

Pippa was charming, intelligent, a spark, full of happiness, energy and spirit.

She had an aura that captured everyone. She used to say to me, “Mum, no matter where we are when I walk down a street people look at me and smile……….”

Her beautiful blue eyes that drew everyone in remained full of life until the very end.

 

Pippa knows how much she is loved and by how many people.

Pippa has especially felt the love of her brothers James and Patrick – The best brothers in the world.

They have loved, cared for and protected her not just this past 21 months, but for 11 years.

Pippa made every day count and James and Patrick have been part of every single day.

 

Pippa knows everyone will be sad. And she knows everyone will be sad for a long time.

It’s OK to be sad, she said.  It’s OK to have Sad Feelings and Happy Memories.

 

We all have so much and so many different ways to remember Pippa.

 We will all remember her long hair,

We will all remember her sparkling blue eyes,

We will all remember her cheeky smile…….

 

Pippa, so full of life…….

A Perfect, Angelic Doll inside and outside

 

Sad Feelings and Happy Memories

 

Pippa, my poppet, my darling, my soul mate, my sunshine, my sparkle, my light, my sweetheart………

 You will always and forever be with me.

You will live on inside me forever.

You will always be “Legs Eleven”

 

Pippa, no one will ever……………….love you as much as I do

We finished with blessings and everyone then closed their eyes and listened to the sound of the meditative singing bowl which Pippa loved to relax to at the end of her yoga meditations with Patricia.

It was a sad but beautiful day.  The sun came out as we entered across the bridge, birds chattered and squawked above in the tree tops, ducks swam on the pond behind the stage, a helicopter flew overhead as I read my Eulogy and a gust of wind swept through as Pippa’s casket was lifted to depart the gardens.

We farewelled Pippa at the bridge whilst listening to a passage from the Far Away Tree.  I watched her butterfly painting on the end of her casket go perfectly over the magical little stone bridge and disappear canopied by the weeping willow trees

Our final farewell for Pippa was placing frangipanis in the beach off the jetty………

The moon came out from behind the cloud at exactly the same time James, Patrick and I stood at the end and threw ours in together…….

A perfectly beautiful finale for a perfectly beautiful girl…………

“Some people come into our lives and quickly go. Some people move our souls to dance. They awaken us to a new understanding with the passing whisper of their wisdom. Some people make the sky more beautiful to gaze upon. They stay in our lives for awhile, leave footprints on our hearts, and we are never, ever the same.”

-Flavia Weedn

Thank You to every single person who came (and also to those who couldn’t) to support James, Patrick and me yesterday in our perfectly beautiful tribute to Pippa, the wondrous life life that she had and the truly amazing person that she is.

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Funeral Arrangements

The boys and I have been overwhelmed by the sympathy shown to us in Pippa’s passing.  Her life has truly been remarkable.  What is also astounding is the enormous number of people who have viewed this blog.  A beautiful tribute shrine has been set up at her Primary School. An article was featured in the local paper today

I have received many queries as to whether or not Pippa’s farewell will be public.  Pippa never excluded anyone.  A funeral will be held for Pippa in the Botanical Gardens, Warrnambool on Thursday 2nd April at 4pm.  Yes, it will be an incredibly sad day but we will be surrounded by life and it will be beautiful.

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