Pippa Rea

Pippa's Journey with a Brain Tumour

Lygon St

A good part of today day was spent at Peter Mac being measured, assessed, scanned, informed and questioned in preparation for radiation.  It feels like this can’t be happening; that this is not actually me.  Unfortunately, I know that it is true simply because I’ve never spent this much time with this many medial people in my whole life.  There’s certainly no way I can be dreaming up or imagining the sort of stuff they talk to me about.  Quite often I find myself saying, “Sorry can you repeat that, I didn’t hear it?”

The complicated formulas that need to be worked out for Pipps’s treatment can’t be rushed, nor too can the healing of her surgical scar.  Thus, tomorrow we return to a normal life – home, school and sport (along with the odd sibling tiff!).

Tonight was spent enjoying a fun family dinner in Lygon St – Pizza, pasta and Ice Cream!!!!

Pippa is pleased to be heading home to her own bed, I am exhausted.

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The Worst 24 Hours of My Life

I honestly thought I had already well and truly had more than my fair share of “bad stuff” (I’ll refrain from using expletives) in my life.  Clearly everything that has happened to me over the past years has been to prepare me for what now lies ahead.  I have fought hard and strong before for the wellbeing of myself and my children and I will do it harder and stronger again.

Pippa has been diagnosed with an aggressive form of brain cancer within her brainstem.  Her treatment will soon start and will involve 6 weeks of daily radiation at Peter MaCallum Cancer Centre combined with oral doses of chemotherapy.

I believe in her and I believe in the team of Doctors (in particular, her oncologist) that are going to be walking this path with Pippa, James, Patrick and myself.

At the moment we need to find self contained accommodation for Pippa and myself in close to Peter Mac for 6 weeks with the hope that she and I will return to our boys each weekend to hang out and watch footy.

I need the continued positive support and energy drawn from all our family and friends.  Sometimes, I might need our little bit of space also.

Here begins our journey and I hope with all my heart and soul that this day will remain for ever the worst day I will ever have to endure.

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Bandages and Boys

Pippa woke as bright as a button this morning and did some drawings.  Lots of sleeping still, but she was able to have her bandage removed which feels great.  Another highlight of Pippa’s and my day was a surprise visit from Tony (my Dad).

Today, however, was more about the boys.  I wanted Pippa to have a really good rest day as I was expecting it to be a pretty yuck pain day coming off morphine – yet again she was a trooper and ended up having no pain at all.  A friend brought her boys in to pick up James & Patrick and they had a fun afternoon playing Laser Strike at Crown and eating junk food!  When they eventually came back to the hospital laughing and kicking the footy as they walked in, they then decided to embark on a game of “Elevator Tiggy”

Early this morning Patrick was kindly picked up by a friend and taken to Windy Hill for an open Essendon Training Session.  In one word – Awesome!  I think the grin says it all!  He’s still smiling because he’s backing it up with tickets to the Bombers match tomorrow.

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Sleepy Limbo

Pippa has had a very sleepy day feeling the affects of such a big surgery.  Of course her brothers and Nan were here for her when she needed to see them.  They have been staying at Ronald McDonald House which is terrific to have them close by.

The tissue from the “lump” is still proving tricky to diagnose and thus we won’t have any answers to what it is until mid next week.  Likewise, what lies ahead of us is still unknown.

On a brighter note, Pippa was happy to wake after one sleep to a brief visit of brightly coloured balloons from her cousin and friend, Claudia.

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What a Star You Are

Surgery went well and the Neurosurgeon was able to obtain a good amount of tissue samples for testing. She came into recovery able to move all limbs and body parts and her face has not deteriorated further.  She’s having a lovely sleep and has come through recovery perfectly!!

That’s  Step One down, now back to limbo waiting for test results.

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A Day of Brain Surgery

Darling, Gorgeous Pippa went bravely into brain surgery with her big blue eyes sparkling and a smile on her face right until she fell asleep. (After a rather sleepless night I’m actually a bit jealous that she’s going to catch up on about 6 hours!)

My hopes are that the doctors are successful in gaining tissue to test so we know what this lump is and how it can be treated – and that they can do it without any complications for our little princess.

The last things she wanted to know was how long until she could eat some food and how long before she could run around and play sport after her operation!   She wanted to me to wear my peach earrings she had bought me as a present.

We did maths sums as she went off to sleep and we both agreed that she was faster than the theatre staff and that she has a super duper brain!

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