Pippa Rea

Pippa's Journey with a Brain Tumour

A Funny Thing Happened in Faulkner Park

The title of this post should have been, “A Frantically Busy Week” or “The Boys Came to Visit” or “24 Hours of James & Patrick”, but no, a funny thing did happen in Faulkner Park.

We have had a huge week trying to fit in everything from treatment appointments, doctors’ appointments, therapies, exercise, sleeps, coffee and of course just the right amount of wine with girlfriends to keep me sane!  It has been frantic (not the coffee and wine parts) to say the least and I have not even opened my computer once.  I have, however, switched into “work mode” to make a couple of alterations to our schedule (thank you Peter Mac for understanding) and from next week our routine is set and I will be completely organised and back in control of everything (that I can be)!

James and Patrick visited on Wednesday for 24 hours and in true boy style they were intrigued with everything that was involved in Pippa’s treatment – they participated in her music therapy and made sure they tested out as much of the equipment as  possible!  It was so important for their understanding, but also for Pippa, to have them spend time with her experiencing her treatment.  We had some family time, caught up with friends and we all went to Faulkner Park to check out Pippa’s brand new, very cool scooter that she and I went shopping for earlier in the week.

Of course, the second we entered the park Patrick produced a long punt of the footy that is permanently attached to his arm.  Who would have thought it would end up in the top of a tree????!!!  Hmmmm……..

Patrick climbed, I advised, James threw sticks and Pippa giggled.  The tree was not conducive to climbing so Patrick’s attempt did not result in enough height.  James was persistent with his sticks but I thought shaking a branch kind of in the vicinity of where the footy was might do the trick………….

James eventually managed to get the footy out by throwing sticks.  I, on the other hand, ended up with the branch coming off in my hand and the attached ‘limb’ landing on top of my forehead!  I’m not talking small either, the limb broke away from the trunk, hung for a few seconds and then fell smack on my head as I turned to look up!   Pippa was heard to comment through fits of giggles, “Mum, anyone would think it was you on steroids pulling down that big branch!”.

Now, for anyone reading this who works with me during September and knows of my protective nature toward “Park Elms”, my instant reaction was to look around for any witnesses (particularly those in white utes), drag the limb to a “windswept” position,  pretend as if nothing happened and ensure there was no photographic evidence in existence.  (By the way, I have not done that before.)  The only witnesses turned out to be my hysterically laughing and oh so concerned children and friend along with a man walking his dog who was clearly going to get excellent mileage for the rest of the day!  How those people on Funniest Home Videos know to get ready to film in advance, I have no idea.  What I do know, is if we had, we would win hands down!

Laughter is an important part of our lives.  As a family the four of us have always had a lot of laughs and fun.  I’m thrilled that a great deal of enjoyment was gained from my expense – Pippa was doubled up barely able to stand!  A rather large egg on my head was a small price to pay for a story that she has giggly retold many times.

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Pippa had a Party………

……..and 150 people came!

It was just what the doctor ordered!

Classmates, cousins, friends of Pippa’s, friends of James’, friends of Patrick’s and family friends filled the bowling alley. Ages ranged from 2 to 78 and both ends of the spectrum had a go at bowling!! That competitve edge kicks in a lot more in your 70s though!!

The bowling balls were rolling, air hockey was intense (at Olympic standard) and one of the most beautiful parts of the night were the secret deals being made between all the “big boys” to ensure that Pippa finished up the night with the most enormous pink teddy in her possession! – Thanks Guys!!! 🙂

The party (suggested but not planned by me, thank you; we just supplied the names) was a great talking point and distraction between us during our first few days of treatment and something incredibly exciting to look forward to when we came home. Pippa’s contribution to the party was to help me make a Ferrero Rocher Tower which she very carefully held in the car on the way there.

To have such an awesome party was the best thing to do on this first weekend back. She is still utterly thrilled about it and had so much fun. Thank You to everyone.

PS – apologies if I missed anyone on the invite list x

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Princess Pippa the Pink Poodle

Pippa has had a great week in Melbourne despite adversity.  Skyping her brothers every night has been beautiful and very entertaining to say the least!

Treatment is just becoming part of our daily routine and Peter Mac have been terrific in accommodating our schedule so we can come home on a Friday and return on a Monday to spend the most time with the boys.

It’s very obvious that there are people who are just born to work with children and the radiation staff at Peter Mac are no exception.  Intelligent and skilled in their field yet so wonderful in dealing with children.  Ashleigh, Pippa’s radiation manager  makes us feel welcome and happy every day (whilst ensuring that the most complicated  physics calculations align).  Today she also presented her with “Princess Pippa the Pink Poodle” (how on earth she came up with this name I don’t know!!)

Pippa happily announced to me that this place is not like a hospital at all – not only does she get to walk through a tunnel of stars every day and go into a room with cool lasers but they also make balloon animals!!!!  In addition, she also gets to sing One Direction, Taylor Swift and Bruno Mars etc with Ellie in music therapy while we wait.  Apparently there is even a recording planned!!!

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First Day of Treatment

Step One, Phase One……….  First day down of this particular chapter of our journey and only 6 weeks and 2 days to go 🙂

Loaded up in the car with our enormous Pandora’s Box we headed to RCH and Peter Mac with “Nan & Tony” alongside all the way.

Blood tests, tablets and treatment……………Pippa still did not let us down!  She was brave, calm, happy, witty and gorgeous every step of the way.  This lump has clearly made the wrong choice of brains!! (not that anyone should ever have to endure one)

We arrived at our divine new “home” on St Kilda Rd overlooking Albert Park Lake to a small welcoming committee that included a bevy of goodies and a cute little fish now named “Bluebelle”.   Pippa had been excited all day to arrive which took the focus of the other purpose of our trip.  Nothing had been forgotten and it was very evident that a thoughtful group of friends and family had been hard at work over the last two days in preparation for us.

Thank You x

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Follow Your Heart

Pippa loves “assisting” in choosing my clothes.
Today she has chosen this t-shirt for me to wear……… I am

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Momentous Thanks

Tomorrow is day one of the next 6 weeks – the  start of Pippa’s first part of her treatment plan and  before we begin I would like to thank everyone for their support, concern and care.  (As a post script from an earlier blog, we have been fortunate to obtain an apartment in a great location and are very grateful to those who have helped with this.)

Many times in the past month, I have expressed in conversation how genuinely overwhelmed and amazed I am by people throughout this tumultuous journey that my family has found ourselves in.

I have to use the word “people”  as we have received messages, gifts, kindness, help and support from near and far;  friends old, new & rekindled; friends of friends;  and people we have simply never even met before.   I honestly call each and every person our friend and I thank everyone from the bottom of my heart for their incredible generosity.  I did shed tears tonight when it became very apparent to me that words of thanks are merely not enough for the support my family has received.

Very early on in the piece Pippa described this month as really being “Christmas in July”.  In what should be such a dull time I sincerely thank you all for bringing her joy and light.  We have packed for our journey a huge suitcase full or all sorts or interesting activities, books and games.  Nothing has been left behind and it will be her own “Pandora’s Box” to open each day.  I am looking forward to her and I spending some lovely hours creating some wonderful memories using all these beautiful things.

She’s tucked up into bed after special cuddles and chats with her brothers.

I’m as ready as I can be……….

Strong

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